Embracing Disability: A Remarkable Opportunity for Awakening
"My days are filled with the heartbreak and exhaustion one would expect from the experience of slowly losing a child, but they are also infused with wonder, gratitude and beauty."...»
Read More
Explaining Cremation to Children
"Explaining death to children is hard enough, but what do I say when a child asks me what cremation is?"...»
Read More
Writing the Obituary - What is it? What do I say?
"I miss my son so much I can hardly breathe. How can they expect me to write his obituary when I am not even ready to say good-bye. Can I get some help with what to say?"...»
Read More
Funeral Planning
"I have never planned a funeral. In fact I have never even been to a funeral and now I am faced with the overwhelming task of planning something loving and meaningful for my child. How do I begin? What are my options? Do I have to use a traditional funeral home?"...»
Read More
Preparing for a Crisis
"How do I prepare for a crisis or life-threatening situation?...»
Read More
Rights of Parents When a Baby Dies
"My infant son is dying. We want to bring him home. What can we do to honor him?" ...»
Read More
Making Memories
"I want to create as many memories as possible during these times - things I can keep forever."...»
Read More
Creating a Loving Space in Your Home or at the Hospital
"It seems like my child may be transitioning. I want to create a loving and supportive space for her and for our family. I know I need to take charge of the situation but it is just so difficult. I need support. I want our child's passing to be peaceful and loving whether it happens at home or at the hospital. This may be the last loving thing I can do for my child."...»
Read More
Helping Your Child When Death Is Near
"I understand that my child may be actively dying. How will I know when death is near so that I can be supportive and loving and not panic."...»
Read More
See You Next Christmas - Written by Our Beloved Nick
"We all need to hold on to hope, no matter what the doctors say. I want to share my story with other families who are told that there is no hope. Sometimes hope changes and sometimes things don't turn out the way we "hope" they will, but hope and love never go away. I am writing my story so others can be filled with hope and love even when things are really bad." Nick Snow, age 16...»
Read More
Increasing Pain, What Does It Mean?
I am worried that my sons increased pain means that he is getting worse....»
Read More
Grandparents and Other Family Members
"Should I accept help from grandparents even if they can be overbearing?...»
Read More
Problems with Eating and Nausea
Im worried that my child is not interested in eating. What can I do to help his appetite and frequent nausea?...»
Read More
Physical Challenges
My child is very uncomfortable. What should I do if she is constipated?...»
Read More
Talking with Your Child
Its so hard to get my child to open up. How can I get her to talk about what she is feeling?...»
Read More
Offering Support When Your Child is in Pain
"I cannot bear to see my child in pain, and I feel so helpless. What can I do to support her? How can I support her and not fall apart myself?"...»
Read More
|
